still here

I just want to write something before this month ends this week.  Last month was super crazy. I won’t go into much details but let’s just say that we have many medical bills heading our way. It was a broken, lost and despairing month. Thanks God that March has been better for us. We did celebrate our 6th anniversary together on March 1st. I had lots of sushi and sashimi on that day. My health overall has been great aside from the infection I had in Feb unrelated to my kidneys. But it has been resolved. The ongoing issue now is with my husband and I pray that God can heal whatever that is causing pain/discomfort in his urinary/reproductive system. We saw a urologist/fertility specialist in Feb and we had all these questions and his answers stemmed from scar tissue from the reversal that my husband had two years ago. We’re not convinced at all, we think this is totally a different problem. They gave him a urine sample and ultrasound test and all came back normal. But because Jason has a history of reversal and prostate problem in the past, they use that as the cause of his pain. The solution? Another reversal. Sorry, no. BTW, Jason later had a semen analysis done and it showed that he had millions of little guys, so definitely not scar tissue.

We’re just so fed up with doctors who aren’t caring and don’t take the time to talk and understand a patient. Thankfully all of my doctors that I have had seem more understanding and caring then Jason’s. We’re going to try again, pray and find a different urologist and hopefully someone who will listen and take the time to examine and figure this one out.

We know that God will get us through it. I’ve been dwelling on this verse a lot. “we know that in all things God works for the good of those who love him, who have been called according to his purpose.” Roman 8:28

 

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6th anniversary picture 🙂

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Happy New Year 2019

Happy New Year! I’m already excited about this new year and what God has in store for us.

I just got back from my nephrologist visit. We go every year since 2012 when I was dx with an autoimmune in my kidneys. In 2012 I had a stage 4 kidney failure and my creatinine was at a 4! I had hematuria, proteinuria, HTN, and edema. My kidneys were rapidly declining and the doctor was talking about possibly putting me on a dialysis and enlisting me on a kidney transplant. Because my kidneys were plummeting, I was given chemotherapy to wipe out my system to slow or stop the decline. And it did work to some extent, however, my doctor said that my kidneys may function only at a certain percentage and that I may still exhibit sxs for the rest of my life. Also I had a blood transfusion and had some blood clots as a result from that. I was on many meds and as I could recall it was about 22 different meds. I remember counting each one and telling Jason that I don’t think that I can swallow all these meds.
I had many doctor visits nearly each week for months and months. I also had chemotherapy for months too. Jason took me to all my doctor visits. And that’s why he is such a good husband!

Every month I started to get better and had less sxs. I wasn’t on nearly as many meds, and I was told that there were a few meds that I may have to take for the rest of my life. My doctor’s visits were cut to 3 months, 6 months and 1 year. Things were improving, but every year at my nephrologist visit, I would still show a small amount of blood in my urine. My doctor said that it may never healed despite my creatinine was at a normal range.

Today I went in for my annual renal visit and I did my urine test, everything checked out perfect! My doctor said that there was no blood in my urine. And all of my blood work came back normal with creatinine at a 0.66, BUN 9, no blood, glucose, and protein in my urine, no sxs of kidney failure. My doctor took me off my LAST meds and he said, “no more visits, you’re a free bird now”, and that made me feel quite sentimental. It has been a long journey of 6 years to finally feeling normal again and no longer having to take any meds! Clearly, I’m sharing this because I serve an Awesome God and He did not forget and abandon me during those most difficult times of my life. He’s taught me so much during those tough times that all I want is more of Him and less of me.

The greatest love of all is the love that God has for us by his son on the cross. So my encouragement to all is that whatever situation in life that you are going through, know that God loves you and He will never abandon you! Hold on to the faith, pray, and read your bible! I hope my testimony will bless and encourage your walk in the Lord, no matter what life throws at you.

Happy New Year and God bless!

 

 

i’m still here…

I was told by my sister-in-law that I haven’t blogged in a while, and I know I haven’t been on here writing as much as I would like.

So here I am updating on what has been going on.

These past few months, we had two deaths in our church. One lady was a missionary to Cambodia for many years. She was a humble, compassionate, and giving woman. She opened an orphan center and provided food and school for the children. While she was in Cambodia, she had an accident and sustained a head injury. She was transported back to the USA and was hospitalized for months. She passed away from bacterial infections that spread rapidly.

The second lady was my aunt-in-law. She had been battling with cancer for almost 6 years. At first she had breast cancer and she was in remission for about a year. Then the cancer came back and metastasize in her lungs and bone. She went overseas to visit her children and when she flew back to the USA, she died on the plane.

And recently I learned that a coworker that I used to work with at the bank, passed away too. I don’t know what happened but it’s shocking and sad.

It can be very sad when people we know and build relationships with is gone. I think it’s their absence that makes it difficult, and also the memory that left behind.

As a  Christian, we get to be with Jesus and that is a very special joyful celebration for life after death.

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On a different happy subject, I don’t quite want to mention it or it probably sounds like I’m boasting, but we paid off our mortgage! ! 🙂 PRAISE GOD! Debt-free!! I honestly don’t know how we did it!! Maybe it’s because we’re frugal people who shop at Goodwill and buy things when they’re on sale. 🙂 Anyways, thanks God for providing when we were not expecting it to happen soon!

My little nephew just had a birthday, and he turned one!! He can walk too. He’s such a cute little guy who LOVES to eat. Cheers to being one, Titus!!

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Another exciting news is Jason and I are involved in a men and women bible study group. This was something we had prayed about and God has led us to connect with some old friends. The women’s group we’re starting from the basic learning to study the bible with both our hearts and minds, using Jen Wilkin’s book. This was also something in my heart that I want to learn because honestly I don’t know where to start in the bible. Although I grew up in a Christian family, read my bible, attend church, learn the stories in the bible, sing hymns and praise and worship music, I still feel like I don’t know who God is. I want that deep inner knowing and connection of who God is. God spoken in the same direction to a lady and she approached me with the topic and invited me to her study group, and it was another WOW moment! God works in wondrous ways!

So there had been some good and sad things. But like in 1 Thessalonians 5:16-18 says, Rejoice always, pray continually, give thanks in all circumstances for this is God’s will for you in Christ Jesus. This is just one of my favorite bible verses!

mini updates

Sorry, I haven’t been back to write. I’ve just been so busy,  but I’m here to update on some stuff.

The last time I posted was about a month ago about my anniversary. I can’t believe it’s been 5 years since Jason and I have been married. It was a rocky beginning of our marriage that no one would want. We faced with many difficult hardships because of my medical problems. I lost my job, health insurance, medical bills piled up, and had lots of doctor visits and treatments. Though these obstacles came first in our marriage, it helped build our characters and marriage, and we thank God that He provided and sustained us through those hard times.

We sponsored another child from Ecuador through Compassion. Our first sponsored child is from Ethiopia. We decided that we’re going to keep sponsoring girls because many girls in poor countries don’t have advantages like boys. We hope that they get to go to school, learn about Jesus and share Jesus with their family and friends.

I had to redo the 23andme DNA, not sure why they can’t extract my DNA. It’s going to take a while.

We took my little cousin and some people from our church fishing last Sunday. My little cousin just seems so unmotivated, quiet, emotionless, aloof, etc. I don’t know if it’s because of puberty that makes him this way or because his parents are having medical problems and he just shuts himself off. His mom has cancer and his dad has constant head pain and the doctor couldn’t find the answer. Jason and I have tried to invite him to do things with us like going to the store to get bubble tea, hanging out at my brother’s house, and helping with homework. We thought that taking him fishing since he’s never fished before would help boost his confident and feel a sense of accomplishment. He actually caught many fish that day. That was so exciting for us but we couldn’t really tell if he was too, he was just emotionless. Hopefully he was happy inside. My parents mentioned that he likes digging clams, so maybe when we get our boat fixed and the weather permits, we’ll take him out to dig clams.

Let’s see what else, oh Jason’s best friends adopted a baby girl. So excited for them and they have been praying about it for the longest. We still pray and hope that God will shed lights on us in wanting to start a family too.

Lastly, we’re starting to look for some lakefront land away from the city and congested town that we’re in. We pray we’ll fine one between both of our parents locations so that we can still visit them.

I think that’s all for the updates.

I’ll return to write more.